August in Massachusetts is known for trips to the beach, family vacations, and back-to-school activities. But a key event across the state is the Pan Mass Challenge (PMC), a bike-a-thon which, since 1980, has raised over $ 831 million dollars for cancer research and patient care at the Dana Farber Cancer Institute in Boston. This year, my husband and I will get on our bikes as Team Sunshine and participate in our tenth ride hoping to bring our personal fundraising total to over $150,000.
In 2020, when the PMC was “Reimagined” because of the pandemic, I published a Privacy Notice that explains how donations and personal information we receive will be used if you choose to check out my reasons for riding and donate through this link http://profile.pmc.org/SK0183. Like all good privacy policies, notices, and related materials, this Privacy Notice should be reviewed regularly and updated as regulations, business operations, and fundraising needs change. Now, with the PMC “Back in the Saddle” for 2022, I have updated this Privacy Notice.
Our Approach to Protecting your Personal Information
Sharon Kamowitz and Team Sunshine are committed to establishing and maintaining the highest data protection standards for all information related to your donations. Our privacy program furthers our commitment to raise funds to support groundbreaking research in immunotherapy, precision medicine, and compassionate care for patients and their families. One hundred percent of rider-raised funds goes directly to research and patient care.
The privacy of your personal information is a significant responsibility and we are committed to maintaining strong and meaningful privacy protections that comply with all legal, regulatory, and contractual obligations.
This Privacy Notice is designed to inform you about the information we collect, how we use it, and your options regarding certain uses of this information. We are committed to ongoing oversight of our privacy program to ensure that we continue to respond to changes in privacy expectations as technology and our fundraising and cycling efforts continue to evolve.
Personal Information We Collect
For the purpose of this Privacy Notice, “Personal Information” means information that may identify you as an individual, including, but not limited to:
Name
Address
Email address
Phone number if on an email signature
Check and bank account numbers if you mail a check
Health information if you share your or your family members’ experience with cancer or other diseases.
How we Collect Personal Information
The types of information and the ways in which we collect your information depends on the nature of our relationships and the requirements of applicable laws. We may collect personal information about you through:
Friendships
Working relationships
Email and physical mail
Social media
We especially like to collect information when you contact us to ask how to donate and to thank us for our efforts.
In addition, we collect personal information when you donate through our individual and team fundraising pages on the PMC website. Please see the PMC Privacy Policy at https://www.pmc.org/privacy-policy for details on their privacy practices. While you are on the PMC website, you can donate to my ride and learn more about the PMC’s mission and how your donations are used.
Team Sunshine does not collect credit card numbers and we will only be informed that a payment was made. In addition, we have chosen to keep all of our donor’s information confidential and therefore it is not displayed on our PMC pages.
How We Use Personal Information
The personal information that we collect from and about you helps us improve our fundraising efforts with the goal of providing needed funds for cancer research. It also helps us maintain our friendships and communication strategies. We may use the personal information we collect in the following ways:
Thanking you for your donations
Wishing you and your family health and happiness.
Providing you with updates about our ride and fundraising efforts.
Sending you photos along the way.
We may aggregate and/or de-identify your information to provide our donors and potential donors with fundraising updates.
How We Share Personal Information
We may share your email address with third parties to provide mailing services on our behalf to solicit donations and to send thank-you emails. Third parties are required to provide reasonable assurances that they will: 1) maintain the confidentiality and security of information we provide to them; and 2) comply with applicable laws and any limitations that we or you lawfully place on the use of that information. Third parties are prohibited from using your information for purposes beyond the scope of services that they provide on our behalf.
We may also share your information as required by law, judicial proceeding, court order, legal process served on us.
Individual Rights
In some situations, you may have individual rights regarding how we handle your personal information. These may include the right to opt out of future communications or request corrections to or deletion of information.
Safeguarding Personal Information
We take steps to limit the collection and use of your information to the amount reasonably necessary to accomplish the purpose of the collection or use.
In addition, we use technical, administrative, and physical measures designed to safeguard your personal and other information from unauthorized access or use. These may include physical security, secure passwords, authentication and access controls, regular monitoring and repair for known vulnerabilities, protection against phishing, spam, viruses, data loss, and malware. In addition, we have processes in place for secure storage and disposal of personal information.
If you believe that the security of your information has been compromised, please notify us via the contact information below.
Retention of Personal Information
We maintain your information only for the amount of time it is needed to fulfill the legitimate purpose for which it was collected, including maintaining friendships.
Changes to this Privacy Notice
We reserve the right to change this Privacy Notice at any time. As regulations, business operations, and fundraising needs change, we will review our practices regarding the collection and use of personal information and amend this Privacy Notice as appropriate.
Contact Us
If you have questions regarding this Privacy Notice, the personal information we collect, use, and share about you, or about how to donate to our Pan Mass Challenge Ride, please contact us at: https://www.kamowitz.com/contact
And if you just want to donate, you can do so here: https://profile.pmc.org/SK0183
Effective Date
Effective July 23, 2020; Revised August 3, 2021, July 27, 2022